Terri’s Life Matters

In an affidavits made public on www.terrisfight.org, nurses and caregivers of Terri Schiavo testify to the fact that she is not in a persistant vegatative state and has been unjustly deprived of basic health care and rehabilitation by order of her husband, Michael Schiavo. At the end of these quotes is information on what you can do and links to more articles.

All bolding and italics are mine

Certified Nursing Assistant Johnson:

I learned, as part of my training, that there was a family dispute and that the husband, as guardian, wanted no rehabilitation for Terri…Once, I wanted to put a cloth in Terri’s hand to keep her hand from closing in on itself, but I was not permitted to do this, as Michael Schiavo considered that to be a form of rehabilitation…After about two years, I quit this job, because I was so disillusioned with the way Terri was treated. Someone somewhere along the way should have reported this.”

Does this sound like a woman in a coma? Keep in mind the reason Michael will be allowed to starve Terri to death is because a food tube is considered life support. She has never had a swallow test to see if she can eat because she might choke to death. Certified Nursing Assistant Heidi Law:

Terri had very definite likes and dislikes. Olga and I used to call Terri “Fancy Pants,� because she was so particular about certain things. She just adored her baths, and was so happy afterward when she was all clean, smelling sweet from the lotion her mother provided, and wearing the soft nightgowns her mother laundered for her. Terri definitely did not like the taste of the teeth-cleaning swabs or the mouthwash we used. She liked to have her hair combed. She did not like being tucked in, and especially hated it if her legs were tightly tucked. You would always tell when Terri had a bowel movement, as she seem agitated and would sort of “scoot� to get away from it.

Every day, Terri was gotten up after lunch and sat in a chair all afternoon. When Terri was in bed, she very much preferred to lie on her right side and look out the window. We always said that she was watching for her mother. It was very obvious that her mother was her favorite person in the whole world.

When Olga [another CNA] was talking with Terri, Terri would follow Olga with her eyes. I have no doubt in my mind that Terri understood what Olga was saying to her.

At least three times during any shift where I took care of Terri, I made sure to give Terri a wet washcloth filled with ice chips, to keep her mouth moistened. I personally saw her swallow the ice water and never saw her gag. Olga and I frequently put orange juice or apple juice in her washcloth to give her something nice to taste, which made her happy. On three or four occasions I personally fed Terri small mouthfuls of Jello, which she was able to swallow and enjoyed immensely. I did not do it more often only because I was so afraid of being caught by Michael.

On one occasion Michael Schiavo arrived with his girlfriend, and they entered Terri’s room together. I heard Michael tell his girlfriend that Terri was in a persistent vegetative state and was dying. After they left, Olga told me that Terri was extremely agitated and upset, and wouldn’t react to anyone. When she was upset, which was usually the case after Michael was there, she would withdraw for hours. We were convinced that he was abusing her, and probably saying cruel, terrible things to her because she would be so upset when he left.

In the past, I have taken care of comatose patients, including those in a persistent vegetative state. While it is true that those patients will flinch or make sounds occasionally, they don’t do it as a reaction to someone on a constant basis who is taking care of them, the way I saw Terri do.

I witnessed a priest visiting Terri a couple of times. Terri would become quiet when he prayed with her. She couldn’t bow her head because of her stiff neck, but she would still try. During the prayer, she would keep her eyes closed, opening them afterward. She laughed at jokes he told her. I definitely know that Terri “is in there.�

During the time I cared for Terri, she formed words. I have heard her say “mommy� from time to time, and “momma,� and she also said “help me� a number of times. She would frequently make noises like she was trying to talk. Other staff members talked about her verbalizations.

Michael would override the orders of the doctors and nurses to make sure Terri got no treatment. Among the things that Terri was deprived of by Michael’s orders were any kind of testing, dental care or stimulation. I was ordered by my supervisors to limit my time with Terri. I recall telling my supervisor that Terri seemed abnormally warm to the touch. I was told to pull her covers down, rather than to take her temperature. As far as I know, Terri never left her room. The only stimulation she had was looking out the window and watching things, and the radio, which Michael insisted be left on one particular station. She had a television, and there was a sign below it saying not to change the channel. This was because of Michael’s orders.

LPN Carla Sauer Iyer:

I became concerned because nothing was being done for Terri at all, no antibiotics, no tests, no range of motion therapy, no stimulation, no nothing. Michael said again and again that Terri should NOT get any rehab, that there should be no range of motion whatsoever, or anything else. I and a CNA named Roxy would give Terri range of motion anyway. One time I put a wash cloth in Terri’s hand to keep her fingers from curling together, and Michael saw it and made me take it out, saying that was therapy.

Terri’s medical condition was systematically distorted and misrepresented. When I worked with her, she was alert and oriented. Terri spoke on a regular basis while in my presence, saying such things as “mommy,� and “help me.� “Help me� was, in fact, one of her most frequent utterances. I heard her say it hundreds of times. Terri would try to say the word “pain� when she was in discomfort, but it came out more like “pay.� She didn’t say the “n� sound very well. During her menses she would indicate her discomfort by saying “pay� and moving her arms toward her lower abdominal area. Other ways that she would indicate that she was in pain included pursing her lips, grimacing, thrashing in bed, curling her toes or moving her legs around. She would let you know when she had a bowel movement by flipping up the covers and pulling on her diaper.

When I came into her room and said “Hi, Terri�, she would always recognize my voice and her name, and would turn her head all the way toward me, saying “Haaaiiiii� sort of, as she did. I recognized this as a “hi�, which is very close to what it sounded like, the whole sound being only a second or two long. When I told her humorous stories about my life or something I read in the paper, Terri would chuckle, sometimes more a giggle or laugh.

I made numerous entries into the nursing notes in her chart, stating verbatim what she said and her various behaviors, but by my next on-duty shift, the notes would be deleted from her chart. Every time I made a positive entry about any responsiveness of Terri’s, someone would remove it after my shift ended. Michael always demanded to see her chart as soon as he arrived, and would take it in her room with him. I documented Terri’s rehab potential well, writing whole pages about Terri’s responsiveness, but they would always be deleted by the next time I saw her chart. The reason I wrote so much was that everybody else seemed to be afraid to make positive entries for fear of their jobs, but I felt very strongly that a nurses job was to accurately record everything we see and hear that bears on a patients condition and their family. I upheld the Nurses Practice Act, and if it cost me my job, I was willing to accept that.

Throughout my time at Palm Gardens, Michael Schiavo was focused on Terri’s death. Michael would say “When is she going to die?,� “Has she died yet?� and “When is that bitch gonna die?� These statements were common knowledge at Palm Gardens, as he would make them casually in passing, without regard even for who he was talking to, as long as it was a staff member. Other statements which I recall him making include “Can’t you do anything to accelerate her death - won’t she ever die?� When she wouldn’t die, Michael would be furious. Michael was also adamant that the family should not be given information. He made numerous statements such as “Make sure the parents aren’t contacted.� I recorded Michael’s statements word for word in Terri’s chart, but these entries were also deleted after the end of my shift. Standing orders were that the family wasn’t to be contacted, in fact, there was a large sign in the front of her chart that said under no circumstances was her family to be called, call Michael immediately, but I would call them, anyway, because I thought they should know about their daughter.

Any time Terri would be sick, like with a UTI or fluid buildup in her lungs, colds, pneumonia, Michael would be visibly excited, thrilled even, hoping that she would die. He would call me, as I was the nurse supervisor on the floor, and ask for every little detail about her temperature, blood pressure, etc., and would call back frequently asking if she was dead yet. He would blurt out “I’m going to be rich!,� and would talk about all the things he would buy when Terri died, which included a new car, a new boat, and going to Europe, among other things.

When Michael visited Terri, he always came alone and always had the door closed and locked while he was with Terri. He would typically be there about twenty minutes or so. When he left Terri would would be trembling, crying hysterically, and would be very pale and have cold sweats. It looked to me like Terri was having a hypoglycemic reaction, so I’d check her blood sugar. The glucometer reading would be so low it was below the range where it would register an actual number reading. I would put dextrose in Terri’s mouth to counteract it. This happened about five times on my shift as I recall. Normally Terri’s blood sugar levels were very stable due to the uniformity of her diet through tube feeding. It is my belief that Michael injected Terri with Regular insulin, which is very fast acting.

The longer I was employed at Palm Gardens the more concerned I became about patient care, both relating to Terri Schiavo, for the reasons I’ve said, and other patients, too. There was an LPN named Carolyn Adams, known as “Andy� Adams who was a particular concern. An unusual number of patients seemed to die on her shift, but she was completely unconcerned, making statements such as “They are old - let them die.� I couldn’t believe her attitude or the fact that it didn’t seem to attract any attention. She made many comments about Terri being a waste of money, that she should die. She said it was costing Michael a lot of money to keep her alive, and that he complained about it constantly (I heard him complain about it all the time, too.) Both Michael and Adams said that she would be worth more to him if she were dead. I ultimately called the police relative to this situation, and was terminated the next day. Other reasons were cited, but I was convinced it was because of my “rocking the boat.�

What can you do?

Go to TerrisFight.org and click on “action items.”

More articles:

Hyscience has several interesting articles on Terri Schiavo with information previously unreleased to the public.

Videos of Terri Schiavo show she is alert and responsive. She even laughs.

The nearly $2 million Michael Schiavo won in a medical malpractice suit on Terri’s behalf was supposed to be used for her rehabilitation, but is funding the legal move to kill her.

Neurologist on Terri Schiavo’s neck injury: What Michael Schiavo can’t explain.


11 Responses to “Terri’s Life Matters”

  1. LifeSteward Says:

    Michael Schiavo is no longer acting in Terri’s best interests: he needs to be removed as her guardian. HyScience is doing a great job in leading the charge and has started a BlogBurst. Everyone interested should sign up and contribute.

    Here are some of my contributions:
    Blogging For Terri
    He Loves Her Not
    Another Shot at the Supreme Court?

    I hope you find them interesting.

  2. ProLifeBlogs Says:

    Following the Terri Schiavo Story
    The danger to Terri Schiavo’s life has become critical after the 2nd District Court of Appeal in Lakeland late Friday denied a handful of motions filed by her parents. This means, according to Michael Schiavo’s attorney, that their son-in-law soon…

  3. Common Sense Runs Wild Says:

    Fight to Save Terri Schiavo
    These three stories have me doing a lot of thinking . . . and praying. The first story is from The New York Times Signs of Awareness Seen in Brain-Injured Patients. It reports

  4. Creeping Jenny Says:

    Wow… I’d like to be allowed to die peacefully if I ever decide to, and I’d like to have the plug pulled if I’m ever completely brain dead, but this case has made me pretty leery of euthanasia. People just love to exploit the weak in any way they can. Ugh.

  5. Josh S Says:

    Well, Roe v Wade definitively showed to Americans that if you’re weak, can’t speak, and have little to no political voice of your owns, your rights are totally up for grabs.

  6. Simon Says:

    Josh

    Your comment once again shows extremely shallow thinking.

    Terri’s right is to have done to her what she would’ve wanted for herself in this particular state when she was competent.

    I do not profess to know what she would have wanted, and I do not profess to know what exactly is her present state (whether it is vegetative or not).

    But THAT is what her right is, and that is what judges are doing their best to figure out. It is not easy.

    You are letting your own view about the value of life infect your opinion. You just assume her rights are being violated. But the truth is, given that her right is to have done to her what she would have wanted, you have about the same idea as i do as to whether her right is being respected.

    Because she cannot communicate, judges have to do the best they can to figure out what she would have said.

  7. Janette Says:

    Terri did not have a living will. Her husband didn’t “reveal” what he claims is Terri’s wish to die until after he received a court settlement. That settlement was based on what he said was his intent to provide her medical care and rehab for 51 years, the time he told the courts she was expected to live. After he received his money he deinied her medical treatment and rehab and began his campaign to kill her.

    Now let me stress, Terri had no living will and no one but Michael Schiavo, his brother and his sister and law have claimed (years later, money in hand) that she wouldn’t want to live this way.

    The judge has no way of really knowing what Terri would want. Don’t you think he should err on the side of caution, humanity and life?

  8. Simon Says:

    Janette

    Nothing you said is inconsistent with what I said. You’re applying the standard. I do think erring on the side of life is a good idea. I must say that there should be a limit — we have to have at least some reason to think that from her perspective there could be reason to live. But your presumption, along with that addition, seems reasonable to me.

  9. Josh S Says:

    “Terri’s right is to have done to her what she would’ve wanted for herself in this particular state when she was competent.”

    That’s a total red herring. No one knows what she would have wanted for herself in light of what she knows now. It’s a bunch of fancy language to give us an excuse to kill people that burden us.

    “You are letting your own view about the value of life infect your opinion.”

    Question 1: Do Jews have the right to live if the society in which they are embedded has determined that they are detrimental to that society’s self-interest?

    Question 2: Do black people have the right to be free if they can’t free themselves?

    Do not let your views on the value of human life or the value of choice influence your answer to the above questions.

    “But THAT is what her right is”

    So I’m not allowed to let my beliefs about what inherent rights humans have influence my judgements, but you are.

    “Because she cannot communicate, judges have to do the best they can to figure out what she would have said.”

    Translation: Because she cannot communicate, we have the right to decide what to do with her life. How does that contradict what I said earlier? If you can’t speak for yourself, your rights are up for grabs.

  10. Simon Says:

    What? I’m having troubling deciphering your, well, arguments.

    Doing what someone would’ve wanted is not a red herring at all. It’s your position that makes no sense: you’re saying that whatever decision a person makes before becoming incompetent is irrelevant because they are not making the decision in light of what they learn when they become incompetent. But that is lunacy. If the person is incompetent, he/she can’t reason! He/she isn’t processing information rationally! So your argument makes no sense.

    Under your strange view, we have no reason to honor any advanced directives because they’re all made when competent, without knowledge learned when incompetent. Do you think we should’ve honor advanced directives? That would be a very radical view — one that does not honor the freedom to decide.

    I cannot even fathom your purpose in asking me those questions about Jewish people and African-Americans. I just don’t get it. Of course both groups have rights that cannot be infringed by the majority, including the same rights to freedom that we all have. Those questions shouldn’t come up. Being a Jew or being black does not make someone an incompetent, like a person in a vegetative state. Competent people — white, Christian, Jewish, black, purple, etc. — have the capacity to reason — to live their lives in light of their own judgments. They have an inherent dignity that cannot be violated, even by the will of the majority. They must be able to live life according to their own judgments …..

    And that is what we want for incompetents: to treat them in a way consistent with their judgments made while competent. Now if someone did not have an advanced directive or express any wish, now that’s another story. We need some other standard for such a case, and quite plausibly, from what I understand, that might be the case with Terri Schiavo. But the idea that it is irrelevant as to what she would’ve wanted … well that is wrong and contrary to American individualism and freedom.

    I’m not just invoking my beliefs about the value of human life. I’m informing you what the legal standard is in most jurisdictions.

    So if you can’t speak for yourself, it’s not that your rights are arbitrarily “up for grabs”. THe way you put it disrespects all the people trying hard to figure out what the best way to protect her rights is.

  11. Nancy Ward Says:

    This has been forwarded to Mr. Schiavo’s attorney….hopefully they will sue these so called professional caregivers for these irrational libelous statements

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